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Living with Metastatic Breast Cancer

Read our blog, Looking Back Helps Me See the Progress I’ve Made Against Metastatic Breast Cancer.

This section discusses metastatic breast cancer treatment and care.

Metastatic breast cancer (also called stage IV or advanced breast cancer) is not a specific type of breast cancer. It’s the most advanced stage of breast cancer.

Metastatic breast cancer is breast cancer that has spread beyond the breast and nearby lymph nodes to other parts of the body (most often the bones, lungs, liver or brain).

A diagnosis of metastatic breast cancer is devastating. It’s normal to feel overwhelmed and scared. You’re not alone though. It’s estimated there were more than 168,000 women living with metastatic breast cancer in the U.S. in 2020 (most recent estimate available) [1].

It may be helpful to talk with others who have metastatic breast cancer. We have resources for finding a support group (in-person, online and telephone).

Signs and Symptoms of Metastasis

Metastasis is most often found when people report new and persistent symptoms to their health care provider. Based on the symptoms, tests may be done to check if the breast cancer has returned and spread to other organs (metastasized).

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Newly Diagnosed with Metastatic Breast Cancer

If you’re newly diagnosed with metastatic breast cancer, you’re not alone. We have information to help you make informed decisions about your care. If you have questions and want to talk with someone, call the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877-465-6636) or email at helpline@komen.org. Se habla español.

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Treatment

Although metastatic breast cancer cannot be cured today, it can be treated. Treatment focuses on extending life and maintaining quality of life. As treatment continues to improve, so does survival.

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Emerging Areas in Treatment

Many new drugs to treat metastatic breast cancer are under study.

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Clinical Trials

Clinical trials offer the chance to try new treatments and possibly benefit from them. 

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Managing Side Effects and Supportive Care

There are many ways to manage side effects caused by metastatic breast cancer treatment and the cancer itself.

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Bone Metastases

The bones are one of the most common sites of breast cancer metastases. Bone metastases can damage your bones. Medications to strengthen and protect your bones reduce this damage.

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Managing Pain

Controlling pain is a standard part of treatment for metastatic breast cancer. Many methods of pain control are available.

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Quality of Life

Quality of life describes your overall well-being. Your emotional and physical health as well as concerns about financial issues can affect your quality of life.

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Support

Counseling (either one-on-one or in a group setting) can help improve your mental well-being and quality of life.

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Support for Family and Loved Ones

Emotional support is important for those who love and care for someone with metastatic breast cancer.

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Depression

It’s common to get depressed when you are living with metastatic breast cancer. Let a member of your health care team know how you are feeling emotionally. Depression can (and needs to) be treated.

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Hospice and End-Of-Life Care

At some point, treatment for metastatic breast cancer may be stopped. This can happen when treatment stops showing any benefit or when it negatively impacts quality of life. Reducing symptoms then becomes the focus of care.

Hospice can make this later stage of care as comfortable as possible.

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Financial Assistance

Financial assistance resources are available, including the Komen Financial Assistance Program.

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Educational Resources

Susan G. Komen® has educational resources on metastatic breast cancer.

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Educational Events

Susan G. Komen®‘s Metastatic Breast Cancer (MBC) Impact Series

Susan G. Komen’s free MBC Impact Series provides people living with metastatic breast cancer and their loved ones a safe, space to gather information related to MBC and discover practical resources to help make decisions for improved physical and emotional health. To learn more and register visit www.komen.org/mbcseries.

The Centers for Disease Control and Prevention (CDC) recommends people with cancer and their caregivers get the seasonal flu shot.

Find more information from the CDC about the seasonal flu.

 Find information about COVID-19 and breast cancer.

SUSAN G. KOMEN® SUPPORT RESOURCES

  • If you or a loved one needs more information about breast health or breast cancer, contact the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877-465-6636) or email helpline@komen.org. All calls are answered by a trained specialist or oncology social worker, Monday through Friday from 9:00 a.m. to 10:00 p.m. ET. Se habla español.
  • Komen Patient Navigators can help guide you through the health care system as you go through a breast cancer diagnosis. They can help to remove barriers to high-quality breast care. For example, they can help you with insurance, local resources, communication with health care providers and more. Call the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877-465-6636) or email helpline@komen.org to learn more about our Patient Navigator program, including eligibility.
  • We offer an online support community through our closed Komen Metastatic Breast Cancer group. The Facebook group provides a place where those living with metastatic breast cancer, and those who love them, can find support, friendship and information. Visit Facebook, search for Komen Metastatic Breast Cancer (Stage IV) Group and request to join the closed group.
  • Our free MBC Impact Series provides people living with metastatic breast cancer and their loved ones a safe, collaborative space to gather information related to MBC and discover practical resources to help make decisions for improved physical and emotional health. To learn more and register visit www.komen.org/mbcseries.
  • Our podcast series Real Pink covers many relevant topics for people living with metastatic breast cancer and caregivers.
  • Our fact sheets, booklets and other education materials offer additional information.

 Updated 06/29/22