Everything you do makes a difference

Getting Involved

After treatment for breast cancer ends, you can continue to be a part of the breast cancer cause through research, community work or advocacy efforts.

Getting involved can be personally rewarding and can help others.

Whether you enroll in a research study, serve as an advisor or volunteer for an advocacy group, you can make a difference. Being involved in such efforts makes you part of the progress being made to end breast cancer.

Getting involved in research

Joining a study for people who’ve had breast cancer

There are many clinical trials and other types of research studies for people who have completed treatment for breast cancer. Some of these studies look at the long-term effects of treatment on breast cancer recurrence and other health issues.

Other studies focus on quality of life after treatment, the benefits of complementary therapies or the effect of lifestyle factors on breast cancer recurrence.

If you’d like to join a study, talk with your health care provider. They may be able to help you find a clinical trial or other type of research study.

Susan G. Komen® in collaboration with BreastCancerTrials.org offers a custom matching service to help find clinical trials that fit your needs.

Susan G. Komen® Breast Care Helpline

If you or a loved one needs information or resources about clinical trials, call the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877- 465- 6636) or email clinicaltrialinfo@komen.org.

Learn more about clinical trials.

Serving as a reviewer or an advisor

Some organizations that fund or conduct research involve people who’ve had breast cancer as advocates.

As a research advocate, you may review research proposals and work with researchers to design and carry out studies.

Komen Advocates in Science Program

Komen established its Advocates in Science (AIS) Program to build skilled, knowledgeable and broadly‐networked breast cancer research advocates and actively engage them throughout the research process, where they bring the patient voice to Komen’s – and other organizations’—research programs in all areas of breast cancer research.

Learn more about the Komen AIS program.

Serving as a member of an institutional review board

Institutional review boards (IRBs) ensure clinical studies follow federal guidelines related to research involving people. They also review informed consent materials.

Hospitals, academic centers, pharmaceutical companies and other groups that conduct clinical trials have IRBs. People who’ve had breast cancer are often included as members.

To see if an IRB is looking for community members, contact the research office of your local hospital, university or other agency funding breast cancer research.

Getting involved as an advisor or volunteer

Some organizations, including Komen, and government agencies have programs to benefit people diagnosed with cancer or to serve the community at large.

As someone who’s had breast cancer, you can get involved in these programs as an advisor for planning or oversight, or more directly as a volunteer.

Getting involved as an advocate

Being an advocate for breast cancer awareness and research funding is one of the best ways you can make a difference as someone who’s had breast cancer.

Susan G. Komen® Center for Public Policy

Since our early days, Komen has worked to mobilize communities to take action on issues that affect people with breast cancer and their loved ones. We cannot do it alone. The Center for Public Policy is powered by you.

Learning about public policy issues can empower you to become a strong advocate for change. Together, we can ensure the voices of women and men with breast cancer are heard by lawmakers and government agencies across the U.S.

Action at all levels of government is vital for making the broad, lasting changes we need to save lives and end breast cancer forever. We need your help. Real change requires a chorus of voices.

Learn more about becoming an advocate and make your voice heard.

Government agencies

Support government funding of research

The federal government, through the National Institutes of Health, funds much of the breast cancer research in the U.S.

Let your legislators know (with a phone call, letter or e-mail) you value breast cancer research. This helps ensure funding for cancer research is a priority.

Be an advocate in a government program

Federal health agencies, as well as state and local health departments, have ways for people who’ve had breast cancer to get involved in cancer programs.

To find opportunities at the federal agency level, visit the National Cancer Institute.

To get involved on a local level, learn about programs in your community. Contact your local or state health department or visit the Centers for Disease Control and Prevention website (or call 1-888-842-6355) for a list of cancer programs in your state.

Other ways to get involved with Komen

Everything you do makes a difference

No matter how you choose to get involved, you will continue to make a difference in your own life and the lives of others.

These activities are not only personally rewarding, but they can also benefit many other people diagnosed with breast cancer and their families now and in the future.

Everything you do makes a difference.

Updated 06/18/21


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